Questions to Ask a Doctor for Children with Special Needs

 Providing a Helping Hand for Special Needs Children and Families.

Questions

Becoming a parent is a life-changing experience, and when your child receives a diagnosis of special medical needs, it can bring a mix of emotions and challenges. This article aims to help you understand the right questions to ask your child’s doctors.

1.Understanding the Diagnosis:

  • What does this diagnosis mean for my child’s health and development?

  • Are there different types or stages of this condition?
  • How reliable are the tests that led to this diagnosis?

2. Treatment and Management:

    • What are the treatment options available for this condition?
    • What are the potential side effects of the treatments?
    • How will treatment affect my child’s daily life and activities?

3. Prognosis and Expectations:

    • What is the long-term outlook for my child?
    • Are there any milestones or warning signs I should watch for?
    • How often will we need to have follow-up visits or tests?

4. Specialists and Care Team:

  • Which specialists should be involved in my child’s care?
  • Can you recommend any specific experts or facilities?
  • How will the different specialists coordinate my child’s care?

5. Support and Resources:

  • Are there support groups or resources you recommend?
  • What educational materials can you provide?
  • Are there financial resources or assistance programs available?

6. Day-to-Day Management:

    • What can I do at home to support my child’s health and well-being?
    • Are there specific dietary or lifestyle changes we should consider?
    • How can I best communicate with my child about their condition?

7. Emergency Situations:

  • What should I do in case of an emergency related to the condition?
  • Are there specific symptoms that require immediate medical attention?
  • Can you provide a written emergency plan?

Conclusion

Navigating the complexities of raising a child with special medical needs can be challenging, but you are not alone. By taking proactive steps, seeking support, and staying informed, you can provide the best care for your child and find strength in the community around you. Remember to take each day one step at a time and cherish the unique journey your family is on.

Why should my child go to Tender Care PPEC?

Tender Care PPEC provides care for medically complex and fragile children from birth to 21 years of age in a daycare-like environment staffed with nurses, CNAs, and therapists. We are the first independently owned PPEC in the State of Florida with our initial center opening in 1988. This means we have an abundance of experience and knowledge in providing loving care to this special pediatric population. We have 6 Tender Care PPEC centers throughout Florida, with our newest facility located in Lake Park.

Lake Park Location

Our goal is to enhance the development of each child through collaborative relationships between families, physicians, nurses, and therapists. This holistic approach to care is carried out in an environment that allows the child to engage in social interactions with their peers. This results in thriving children, well-positioned to achieve their greatest potential. We also offer transportation at no cost and provide nutritious meals throughout the day. 

What sets us apart is that we care for and treat every child like family. We have passion in our hearts for our children and a desire to see them succeed.

You can follow us on Facebook, TikTok, Instagram, LinkedIn, and YouTube.

*This is not medical advice, always consult with your child’s doctor before making any changes to their lifestyle. 

Related:

Celebrating Rare Disease Day at Tender Care

At Tender Care, every day is a chance to support, empower, and cherish those facing rare diseases. Today, we shine a light on the warriors among us, marking Rare Disease Day with love and solidarity. Here, nobody fights alone. We’re a family, bound by compassion and united in our journey. 

Tender Care was a Guest on Mama Knows Nada!

Tender Care’s Director of Marketing, Thomas LoBianco, had the pleasure of being a guest on Mama Knows Nada! They discussed the operational processes of PPECs, how Tender Care supports families, and what makes Tender Care so special.

We Attended the Developmental Differences Resource Fair on July 22nd!

Tender Care PPEC attended the Developmental Differences Resource Fair on July 22nd! The fair was hosted by North Florida Behavior Consultants and the Jacksonville Icemen, located at Community First Igloo.

Building Our Village: Allegra Family Pediatrics

The Tender Care PPEC podcast, titled “Building Our Village,” is a compelling new series designed to support families of special needs care. In this episode, Jennyfer from Allegra Family Pediatrics, discusses the importance of early diagnosis and intervention as well as taking your child to the doctor.

What is a PPEC? A Guide for Parents of Children with Complex Medical Needs.

What is a PPEC? This guide explains what PPEC is, how it benefits children, and how it supports families in managing complex medical conditions.

Tender Care PPEC Voted Best Skilled Nursing 2023 Silver Winner

Tender Care PPEC is thrilled to be a 2023 Best of the 352 Silver Winner for Best Skilled Nursing!

Tender Care PPEC Voted Best of Florida® 2022

Tender Care PPEC is thrilled to be a 2022 Best of Florida® Regional winner in Guide to Florida’s annual readers’ poll!

Tender Care Attended Spring into Resources with TLC!

We had so much fun attending Spring into Resources Open House on March 9th! This event was hosted by The Therapeutic Learning Center at the Arc of the St. Johns, located in St. Augustine, FL. We had a lot of families stop by our table to learn about Tender Care PPEC and what we do in the community!

Tender Care Attended Turn on the Lights Expo! [2024]

We had so much fun attending The Children’s Healing Institute’s Turn on the Lights Expo on April 4th! This event was at Palm Beach County Convention Center in West Palm Beach, Florida. We had a lot of people stop by our table to learn about Tender Care PPEC and how we are involved in the community. 

3 Benefits Tricycles Offer for Physical Therapy

Curious about how tricycles help with physical therapy? We explain three benefits tricycles have for your child with special needs.